Stormy with a Chance for Sunshine

Friday, May 21, 2010

Still cough-y, significantly less. I pounded on her for a minute and then told her to just go to sleep and ignored anything else. She went to sleep. Those of you who said this, are ~~probably~~ right. Feel validated? Good. Because you are valid in what you say. My argument: I'm a freak with a 5 year old with cystic fibrosis and Josh is in the hospital AGAIN, this time with a newly installed feeding tube courtesy of blocked intestines (which has virtually nothing to do with his shiny new lungs) and that makes me worry even more about her tiny fake cough. -->me<-- 15="" 3.="" br="" clinic="" freak.="" i="" is="" it.="" june="" know="" psych="" wart.="" worry="">
Also, tired - me, not the baby. She's NEVER TIRED.- . Probably has something to do with this week old headache. People say this is called a migraine. Other people say I've had it for much more than a week. I say I can still drive so it can't possibly be that bad. I don't even HAVE to medicate. (It's my most irritating quality apparently. MommaM says I need to take ~~more~~ pain killers when I am in pain.) I call it a "mybrain" and blame MS.

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Five year olds are not developmentally ready for dresses and dignity. I don't care what their history is. We are jerks for not buying her matching shorts. SHORTS. Necessary.

5 comments:

Foster ImaFriday, May 21, 2010 3:34:00 PM
Sabrina has to wear a uniform to school. She prefers jumpers (as in, she will not wear any other uniform components like pants or skirts). Why does she not like skirts? Because the skirts have built-in shorts.

So you really can't win.
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MammaTFriday, May 21, 2010 4:00:00 PM
--> Foster Ima - that's funny. I take it jumpers are like the shorts/shirt thing that we used to wear in the 80s/90s? I didn't even know they made those anymore. At least you know her underwear (and their contents) are covered, right?
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AshleyFriday, May 21, 2010 6:29:00 PM
Wasn't meaning to minimize your worry over LMS... I'm sorry.
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MammaTFriday, May 21, 2010 6:46:00 PM
-->Ashley,
Oh, hon, I wasn't accusing you of minimalizing at all. I was just venting that I *AM* in fact, a little of a freak when it comes to LMS's health/coughing/etc. I did follow advice. It did work for her.
I did not, however, make *me* convinced that my daughter doesn't have CF and instead just reminded me that it's big and scary and uncontrollable and I don't.like.it.one.bit.
And it didn't help that just a few days ago I read about Josh being back in the hospital.

No need to apologize. You really didn't do anything wrong and I'm sorry I made you feel that way.
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AshleyFriday, May 21, 2010 7:26:00 PM
No worries, then :) I just know how blase I can occasionally be about CF, and it's *scary*.

I'm sorry about your Josh. Thinking of you all.
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HI! We're so glad you came to share with us!
We would love to hear your thoughts and questions!

The Players- "name"(placement duration) - info including age at placement

3g- our "third girl" ((was Lil1 3 years old- Nov2008-May2009) returned to OUR LIVES Feb 2012 when her sister was placed back with us.) She's growing up to be a beautiful, smart girl who now loves Barbies and reading. She loves being withher family and getting to play with big sister again! Certainly still same issues (OK, more than she used to) but is working hard.
AuntM -Born in 1992, MommyT's Oldest (in contact) sibling. Has a son who she is working hard to be a better-than-hers mother to.
Big1(Nov2008-May2009) - 6 years old. Attachment issues, sex abuse, night terrors, the works! Loves princesses and tinkerbell.
DaddyJ -Born in 1983, Friends with MommaM since grade school, Our fosters call him J, our LMS calls him Daddy
Fe -((was Big1 -6 years old- Nov2008-May2009) returned Feb2012 PERMANENT GUARDIANSHIP granted February 2012) 10 years old. Attachment issues (possible/borderline RAD), sex abuse, night terrors, PTSD, ADHD, possible FAS, Failure to Thrive (or starvation, hard to tell which), physical abuse, the works! Pretends to be an animal 80+ % of the time & will turn anything into an "lets be horses" version, Loves princesses and Tinkerbell; has a fairly mild case of B!eber fever.
Grunt - Born Dec 2008, AuntM's son!. Very smart, and likes to learn. A little rough and tumble, but is quickly becoming a sweet little boy.
Lil1 (Nov2008-May2009) - 3 years old. Attachment issues, maybe sex abuse, sleeps wonderfully. Not anywhere near ready for potty training. Also loves princesses! (and care bears!)
MommaM - born 1983, partnered with MommaT since 2003, carried the baby we're pretty sure we lost before we even confirmed
MommaT- born 1982, partnered with MommaM since 2003 (MommyT's family will usually be tagged with "first Family" because... that's just kinda how it feels)
P and A (12hours)- our first, almost placement. Would have come to us at 18 and 5 months old. Ended up being one day of babysitting for the biofamily.
Sunshine- (July2009 - ADOPTION FINAL July 2010) - 4 years old. CF, PTSD, FAS, RAD, Failure to Thrive, physical abuse, emotional abuse, possible sex abuse. She's a ton of sunshine when she's not trying to kill us!
UncleT - MommaM's big (only) brother... LMS thinks he rocks the Casbah! He is awesomely good with LMS!

Terms and Abbreviations we use

BF/BM/BD -birth family/ birth mom/ birth dad
CFRD - Cystic Fibrosis Related Diabetes
CPS worker/caseworker - - These are the people who are in charge of figuring out the best situation for the children.
Cystic fibrosis (CF) - a disease that causes the body to make thick, sticky mucus. This causes problems in two major areas: the lungs and the digestive system. Cystic fibrosis affects more than 30,000 children and young adults in the United States. It can be mild or severe, depending on the person. http://kidshealth.org/kid/health_problems/heart/cystic_fibrosis.html
FDS (worker) - "family developement specialis" This is the guy who is supposed to be looking out for our best interests. Help the CPS worker place kids with the most appropriate family for their situation.
FPA - Foster Parent Association. A "club" of sorts that runs a non-profit clothes/toy/furniture closet where foster parents can come get what they need for their kiddos, they take donations from FPs/the community/everyone, and donate it only to foster parents, when we're done with it, we can return it or save it to use with the next child. They don't even try to keep record of who has what, just use the honor system. Another great thing about this program is that we can donate the stuff we aren't using, freeing up space in our home.
HUB - CPS intake/call center, where kids go if they need a stop between FF and BF, place where a FEW supervised visits occasionally take place in special circumstances.
PFT - Pulmonary Function Test ==>FEV1 - the percent of the lung that a person can use to circulate air. (Sunshine's current baseline FEV1 is 85%)
Respite - Respite, Inc. A childcare center for special needs kiddos ranging from mild retardation/disability up to severe physical/cognitive disabilities. Every day at respite is pretty much filled with fun, trips, play and art. There are (real) nurses to handle medication(s), everyone is specially trained in how to handle EACH child's individual needs, and there's a ratio of no more than two kids to one adult.

Stormy with a Chance for Sunshine

Friday, May 21, 2010

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The Players- "name"(placement duration) - info including age at placement

Terms and Abbreviations we use